Sunday, August 26, 2012

Receiving the Diagnosis Of Prostate Cancer

About 20 months ago I went to my Urologist to get a prescription re-newed.  As I waited for my name to be called, I used to that time to thank God for the good health I was currently blessed with.

Little did I know how quickly things would change. When my name was called I went into the exam room expecting to get a prescription refill and then go on my merry way.

The Doctor said he'd be glad to re-fill my prescription, but first he wanted to examine my prostate. Since I had that exam 8 months ago and wasn't due for another exam for another 4 months I declined the exam.

He said "No prostate exam, no refill." After much thought I agreed to the exam. Little did I know my life as I knew it was about to change in the span of a few seconds.

After the exam, the Dr told me he felt "a suspicious lump" and he wanted to perform a biopsy.  That's how my journey with prostate cancer began.

I have a Masters Degree in Social Work, and worked as a Medical Social Worker. My wife is an RN who worked in Oncology. At the time I naively thought our education and professional training would make this journey easier for us. It didn't.

We were so unprepared, that we decided to write a book so others taking this journey would be better prepared than we were. The book should be available in December.

However my wife and I decided writing a book wasn't enough, we wanted to create a place where men and couples who are thinking about surgery as a treatment option could find a place to go to talk with people further along the road as well as find sources of information.

As I write this blogg, our website is still under construction. Additionally, I must to learn how to add resources to the site. I've never managed a website before. I've never blogged before. However, as I went from the shock of the initial diagnosis through 16 months of post surgical struggles I posted an on-line diary at the prostate cancer support group at mdjunction.com. My diary received approximately 22,000 hits.

This made me realize how great the need is for information as well as support. It's my hope that whereisyourprostate.com becomes a place where men who are diagnosed with prostate cancer and their partners can visit to get support and information.

Feel free to comment here or contact me at whereisyourprostate@gmail.com. My wife can be reached at whereishisprostate@gmail.com