Saturday, January 7, 2017

Base Your Prostate Cancer Treatment on Your Diagnosis NOT Your Fears

The following article appeared in Prostate Cancer News Today on 11/18/2016 on this link:
The Toughest Decision You'll Ever Make

I’ll never forget the question my urologist asked me during my appointment to discuss treatment options: “How would you like to treat your prostate cancer?”
I thought he was joking. I had a palpable lump, 4+3 Gleason score, and a potentially life-threatening disease. How could he expect me to come up with an intelligent answer about treating a disease I knew next to nothing about?
I can’t think of another illness, injury, or disease where I’ve been asked to decide the course of treatment. The only thing I knew at that time was I wanted to treat my prostate cancer aggressively.
I thought back to the dozen books I’d checked out from the library. The easiest form of treatment I could remember was brachytherapy. This option appealed to me because it would require only treatment and there wasn’t much down time. My primary objective was finding an aggressive treatment that was, first and foremost, convenient for me.
I was startled when my urologist ruled out my decision. He said that based on my urological history, I would not do well with brachytherapy. I’d just used up all the knowledge I’d accumulated. I had nothing else to offer. I knew he did, so I searched for a way to get him to tell me what I wanted to know.

The Answer

I formulated a question to get the answer I needed to hear. I asked, “If you had my urological history, a palpable lump, and a Gleason score of 4+3, how would you treat your prostate cancer?” Without hesitation he said, “I’d go for surgery.” I had my answer. I said, “That’s exactly what I want to do. I want surgery.”

The Warning

He gave me a serious, life-altering warning. “Given your urological history there’s a high probability you’ll never regain urinary control,” he told me. Under normal circumstances I’d never forget a life-changing warning like that, but given the anxiety and fear I was coping with, I’d forgotten his warning by the time I left his office.
The warning came back to me two weeks after my surgery and after spending my first day in diapers. By the end of that day, I passionately hated living in diapers. The possibility of living this way the rest of my life caused more grief than prostate cancer. I wondered if I’d made the worst mistake of my life in the way I decided to treat my prostate cancer.

Removing fear from the decision

  • Don’t rush into treatment. Take time to investigate the effectiveness and quality of life issues of each treatment option.
  • Talk to men who are further along in the journey with the treatment choice your are considering.
  • If you base your treatment option on your fears about cancer, the odds are high you’ll suffer some unnecessary and permanent quality of life issues.
  • Base your treatment decision on your diagnosis rather than your fears.
This is by far the most challenging task you’ll face as you consider your treatment options.