Coping with the emotional, relational, sexual and spiritual aspects of prostate cancer.
Tuesday, May 15, 2018
Cancer Survivorship Can Wear You Down
The next day I went for an eye exam. I was certain I needed a stronger prescription. I wasn't seeing words clearly with my left eye. I knew bad news was coming my way when my Optometrist said "I can't get your vision in your left eye better than 20-50. We need to find out why.
I was terrified I could be moments away from receiving a diagnosis of macular degeneration. I breathed a deep sigh of relief when I received the news I needed cataract surgery.
My relief, gratitude, and celebratory attitude over the fact I wasn't going blind, ended abruptly. Soon I found myself feeling miserable about growing old. I'd just finished my third spinal injection for severe back pain few days prior to receiving the news I needed cataract surgery.
My wife who is the keeper of our family history informs me that every year since my diagnosis of prostate cancer, I've experienced some medical emergency or crisis. I know this has taken its toll on me, my wife, and our marriage. I'm a seasoned veteran when it to surgery. Over the course of my lifetime this will be surgery number sixteen. I'm not the least bit worried about the outcome of cataract surgery.
The success rate for cataract surgery is above ninety-eight percent. The recovery time is short. I was surprised that my level of despair was much greater than the medical challenge before me. I tried a number of ways to talk myself out of my despair.
Positive Self Talk Does Squat
According to the literature positive self talk has these benefits:
"People are becoming more aware that positive self-talk is a powerful tool for increasing your self-confidence and curbing negative emotions."
I needed to curb my negative emotions so I said to myself:
1. This is a piece of cake compared to prostate or penile implant surgery. If I made it through those and fourteen other surgeries, I've got this.
2. The benefits to this surgery is immediate within a few weeks I'll notice vastly imported eye site.
3. Cataract surgery is as risk free as can be. It's not like prostate surgery where I faced life long consequences.
4. I am grateful that I live in a country and a city where a skilled doctor will restore your vision.
This is the one I expected would turn things around:
5. Diagnosed with prostate cancer at age fifty-seven, I'm grateful that I lived long enough as a prostate cancer survivor to need cataract surgery.
I wish I was feeling greatful. I thought I should be feeling grateful, but I wasn't. I'm feeling overwhelmed and frightened. For the last seven years I've been falling apart piece by piece, at a rapid pace. Every year it's been a new medical challenge, a new surgery, months of chronic pain, and dozens of sleepless nights. My ability to bounce back is rapidly declining. I can't get a break from falling apart piece by piece.
I've learned a valuable lesson. Sometimes you won't get to where you want to be until you deal with where you are. Whenever you are overreacting to a situation or circumstance, something else, most likely from your past is triggered.
In my situation, I needed to grieve and say goodbye to my expectations regarding retirement. I expected to reach retirement age in good health. I didn't expect I'd be living without a gallbladder, appendix, or a prostate. I never considered the possibility I'd have a penile implant, or I'd be living with chronic back pain. This isn't my season for positive thinking and gratitude. It a season for mourning. I can be grateful and sad at the same time.
It's ironic that on the one hand cancer survivorship has made me stronger. On the other hand it's also made me more vulnerable. I feel worn out. I'm emotionally and physically drained, and that's OK as long as I don't get stuck there
We are capable of experiencing more than one emotion, so that I'm capable of feeling greatful and sad at the same time. My plans and expectations for retirement was not how I planned it.
Monday, April 2, 2018
Acknowledging Cancer Anniversary Dates
Puzzled by. my wife's remark I asked what exactly is this anniversary. She explained that seven years ago I had my prostate surgery at UCSF. I've been living without my prostate and cancer free for seven years. It was a happy anniversary!
I don't pay much attention to dates, so I had no idea this was my seventh anniversary. I wondered if my wife kept track of the anniversary date of my penile implant surgery.
I wondered if cancer survivors keep track of anniversary dates of cancer's devestating, life changing events. Do folks keep track of dates so they can say this the anniversary date of my first hot flash, the day I stopped wearing diapers, my first post op erection.
I'm glad I don't pay attention to anniversary dates, but I'm not sure why. Maybe keeping track of those life changing milestones are days is a worthwhile endeavor. You add events in your life for celeb or mourning.
Keeping this possibility in mind, I imagine throwing a one year post surgery celebration thankful that I graduated from diapers to pads during that first year. I'm not that creative or extroverted to throw a "Goodbye to Diapers, Hello to Pad Party."
I can't decide whether acknowledging anniversary dates is a valuable and important way to cope or whether it makes little or no difference.
According to an article in Cancer.net, Preparing yourself for anniversary dates and honoring them in ways that are meaningful to you may help you sort through complex emotions and reflect on your experiences.
That maybe true for some folks, but I'll pass and continue to ignore anniversary dates related to treating prostate cancer.
What about you?
Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
Saturday, March 17, 2018
Is the Medical Profession Failing Men with Prostate Cancer?
It's the underlying assumption I teake issue with. Men are fully capable of making the correct treatment decision based on their diagnosis when someone takes the time to address their previous experiences with cancer and the fear that arises when you hear the dreaded words: “You have prostate cancer."
When information, rather than fear, drives a treatment decision, you get more appropriate treatment decisions.
For your sake and for the sake of those who love you, you can't assume that you don't have prostate cancer because your physician didn't screen or test you.
Rick Redner and his wife Brenda Redner wrote two award winning books. The first:
Their second book was written for couples living with erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
Wednesday, March 7, 2018
20 Things Men with Prostate Cancer Wish Healthy Friends, Family Knew
Rick Redner and his wife Brenda Redner wrote two award winning books. The first:
Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
7 Things to Do When the Misery of Cancer Won't End
- Chronic, ever-present pain
- Fatigue
- Hot flashes
- Bladder or bowel issues
- Sleeplessness
- Nausea or vomiting
- Poor or no appetite
- Debilitating weakness
1. Pain control
2. Nutrition
3. Sleep
4. Environmental comfort
5. Entertainment and fun
6. Embrace spirituality
7. Take good care of and repair your relationships
Rick Redner and his wife Brenda Redner wrote two award winning books. The first:
Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
Recurrence Anxiety Strikes Unexpectedly
I think it's stressful enough living as a cancer survivor. Now I'm coping with both recurrence anxiety and test-waiting anxiety! At the pharmacy, I paid $80 out of pocket for a muscle relaxer and pain medication. That was a vivid reminder of the out-of-pocket expenses involved In treating cancer or any illness or disease.
Lessons learned from cancer survivorship
- Cancer is a gift that keeps giving in ways I wish I could decline.
- There are specific symptoms that require me to seek medical attention.
- Living with chronic pain is miserable. Therefore, it's tempting (but dangerous) to combine medications or take more than the prescribed dosage of pain-relieving medication. Mixing pain relievers with alcohol is never a good idea. Driving under the influence of certain pain relievers is illegal. Asking my wife to drive me to work is always a struggle.
- Any sudden life-changing symptom is a reminder that my status of good health is fragile and temporary.
- Waiting for tests and results is a reminder of my impatience. Doing something out of the ordinary or special helps me wait more patiently.
- When confined to a chair, I remember how comforting it is to for my dog to sit on my lap.
- Activities such as reading, watching TV, listening to music, engaging conversations, or even talking to my dogs can distract me from constant pain.
- When my wife asks me to refrain from working on any household projects while I'm home alone, I'm reminded of the importance of respecting my wife's concerns, whether I agree or not.
- When circumstances are beyond my control, I'm reminded of the importance of prayer.
- Sometimes not knowing is better than knowing. I'm no longer in a rush to receive bad news. It had been three days since my X-rays, and I was not in a hurry to hear the results.
- Difficulty falling asleep is a hazard of waiting to hear test results. I hate tossing and turning in bed past 2 a.m.
- Based on my symptoms, the likelihood of a ruptured disk is much greater than the likelihood of the return of cancer. Knowing this doesn't prevent me from worrying.
- Cancer survivorship is stressful because of both real and imagined difficulties. I received the results from my X-rays. It's not a return of prostate cancer. What a relief! Note: This article appeared in Prostate Cancer News Today Rick Redner and his wife Brenda Redner wrote two award winning books. The first: I Left My Prostate in San Francisco-Where's Yours?provides men and couples with information and support before, during and after prostate surgery.Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship. The title of their book is: Everything You Never Wanted to Know About Erectile Dysfunction and Penile Implants.
Harmful & Helpful Ways to Think About Prostate Cancer
In my fourteen years of living without a prostate and dealing with the quality of life issues that follow a prostatecomy, I discovered there are comments we say to ourselves and/or those we hear from our friends, family, and healthcare professionals have a positive or negative impact on the way we cope with cancer survivorship.
Following are six distressful comments men with prostate cancer hear frequently:
1. My (father, uncle, cousin, etc.) had the exact same cancer and he (recovered or died). What happened to someone else is irrelevant to a cancer patient, at best. It's downright annoying.
2. You're lucky you have the "good cancer." It's as unlikely as hell freezing over as it is thinking anyone diagnosed with cancer feels lucky.
3. You look great! How someone looks bears little resemblance to how someone with cancer feels.
4. If you try this (insert miracle cure), I'm sure you'll be cured. Unless you have earned your medical degree, most folks coping with cancer are not interested in hearing about your thoughts on a "miracle cure."
5. If you had (lost weight or eaten less dairy, sugar, red meat, etc.), you wouldn't have cancer. Blaming the behavior of the person with cancer may ease your fears about developing cancer. It's not in the least bit helpful to someone who has cancer.
6. Double nerve-sparing surgery will preserve your erectile functioning. According to a study titled, "Sexual Dysfunction after Radical Prostatectomy," published in the journal Reviews in Urology, "The recovery of erectile function is agonizingly slow, requiring as long as 18 to 24 months. ... Patients again assume that bilateral nerve sparing is synonymous with preservation of potency, not realizing that few men experience potency that is as good postoperatively as it was preoperatively. ..."
As men diagnosed with prostate cancer, it's important to develop realistic expectations regarding the quality-of-life issues you'll experience after treatment.
It also is important not to hold grudges against friends and family who say things that hurt rather than help us cope with cancer. Most hurtful comments come from a misguided notion of helping or ignorance, rather than an intention to cause harm.
The following are five unhealthy ways men talk to themselves about prostate cancer:
1. Constantly worrying that cancer will return. This fear is referred to as recurrence anxiety. Many folks with cancer live with a joy-killing fear that their cancer will return. Learning to cope with the possibility of a recurrence may require outside help from a support group or professional.
2. I'm no longer a man. Treating prostate cancer can temporarily or permanently affect erectile functioning. I never knew my sense of being a man was linked to my ability to maintain an erection until I lost my ability to maintain an erection. Men face two challenging tasks. The first involves discovering ways to enjoy sexuality that isn't dependent on an erection. The second involves redefining your definition of manhood. Men unable to successfully meet these two challenges suffer a devastating loss of self-esteem. They frequently struggle with depression.
3. My partner would be better off without me. Men who experience depression due to their loss of manhood believe their partner deserves a "whole man."
4. At least I'm alive. If that sentiment increases your gratitude for being alive, it's a healthy attitude. If that sentiment leads you to a place of passivity or helplessness, it's causing great harm.
5. I must give up on dating or entering into a relationship. These men believe their inability to attain an erection has totally destroyed their value, so they impose a lifetime sentence of loneliness by withdrawing themselves from dating or seeking a relationship.
Once we develop a negative narrative about ourselves or the way we think others see us, our self-esteem and/or guiding philosophy of life is set in stone.
Without intervention or a purposeful challenge of our negative belief system, we say and do things that fulfill that system.
Today, make a list of the negative things you say and believe about yourself and your identity as a cancer survivor.
Here’s seven things I’ve learned to say to myself that defeats my negative self talk:
1. I’m fighting a war against cancer. This reality tranforms me from becoming a cancer victim into becoming a “Prostate Cancer Warrior.”
2. Despite my fears, I've braved testing, treatment, and lifelong consequences.
3. My lifelong quality-of-life issues are battle scars I've sustained fighting this war.
4. It takes bravery and courage to fight the war against cancer.
5. I’ve learned important and valuable life lessons about living and dying since my diagnosis.
6. I will wisely use my time now that I'm a cancer survivor.
7. There are verses in the Bible that offer comfort and support. For me, I found this verse greatly relieved my fears:
“So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.”
~ Isaiah 41:10~
Add a few of your own guiding principles that challenge negative thinking.
Do you notice anything change as you actively challenge your negative thoughts and beliefs?
Per my contractual agreement I must mention this article appeared in:
Rick Redner and his wife Brenda Redner wrote two award-winning books. The first:
Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.