Tuesday, May 23, 2023

Prostate Cancer Survivor

 For more than a decade my identity included surviving cancer. I thought of myself as a Prostate Cancer Survivor.


For more than a decade, I’ve experienced multiple reminders, every day, that I’m living without a prostate so that means I’ve had a minimum of 7,300 reminders and that doesn’t include thoughts the cancer could return. 


If you add those thoughts in, that means I’ve been reminded about life without a prostate  and/or prostate cancer over 10,000 times in the last decade!


For five emotionally painful years I lived with the identity of an “Impotent Man”

I HATED that identity. I wanted my wife of thirty years to leave me so she could live with a “Real Man” that was fully functioning.


A Penile Implant took away my identity as an “Impotent Man.” I was overjoyed to shed that identity.


My journey with Chronic Kidney (CKD) Disease began when I was hospitalized with Sepsis. 


I began with Stage 4 which is severe kidney damage.


Out of the hospital I did everything I could to regain kidney functioning. My efforts were fruitful. My GFR rose to Stage 3a-mild to moderate kidney disease. From my perspective life returned to normal. I thought my experience with CKD came to an end.


However a month later my GFR dropped by 16%. I went to Stage 3B  which is moderate to severe kidney damage.


After my Nephrologist was informed of my current GFR, life was changed. I was told not to eat red meat.  To avoid salty foods, and reduce sugar intake. 


This meant saying goodbye to steak, hamburgers, fries, pizza, frankfurters, pastrami, deli meats, donuts, pancakes and syrup, all alcoholic beverages, and more. 

Thankfully it didn’t mean saying goodbye to Splenda!!


Once I received these restrictions, I found myself craving everything I was told to avoid!  To date, I haven’t given in.


Since it is now necessary for me to drink water all the time, and watch every that goes into my mouth, I rarely get a break from thinking about CKD.


With Prostate Cancer there was the fear of reoccurrence, which most PC patients (including myself) initially think about multiple times a day) 


With CKD that’s the fear is that a falling GFR will result in total kidney failure leading to dialysis.  


I think about kidney failure and dialysis A LOT. It involves three  days a week, 4-5 hours a day in a treatment center.  That’s NOT what I want for my life!


In my mind, I’ve assumed a new identity. My identity as a Prostate Cancer Survivor has taken a back seat to my new identity…A person living with CKD.


I’ve discovered the difference between identities that change with medical circumstances and an identity that NEVER changes.


As a Christian, my identity encompasses all the abundance of being a beloved child of God, and a citizen of Heaven.

That remains unchanging, which I now appreciate more than ever…an unchanging identity!!


Rick Redner and his wife Brenda Redner wrote an award winning comprehensive guide to the physical, personal, spiritual, and relational issues, every man, and couple, will face before and after prostate surgery. The title of their book is:

I Left My Prostate in San Francisco-Where’s Yours?


After four years of coping with erectile dysfunction after double nerve sparing surgery,  Rick & Brenda decided to share their experiences with devastating effects of erectile dysfunction; which led to a loss of self-esteem, and marital conflict.


They shared why they chose to seek professional help to save their marriage. They also provided a detailed account of how and why Rick went the penile implant route, and how that changed everything. This is a life changing book. Don’t take their word for it, read the Amazon reviews.

Everything You Never Wanted to Know About Erectile Dysfunction & Penile Implants







Thursday, May 4, 2023

Biopsy Blues

 Once again I’m waiting to get a biopsy. Once again it’s a 1-3 week wait to get the results.


I believe there’s a natural tendency for us to return and re-experience the trauma of the past, when something similar occurs in the present.


So I understand the vulnerability I have to panic, assume the worst, then have the worst come true.


I doubt I’ll never forget the call I received on a Sunday when my Urologist said to me:

“I’m sorry to tell you this, but you have moderately aggressive prostate cancer.”


On that day I imagined my future with three words:

Excruciating pain 

Suffering 

Death


As an experienced decade long cancer survivor I asked myself the following question:


How can my past experience waiting for a biopsy and receiving the news I have cancer help me to cope.


A far easier question to answer is:

How did waiting for a biopsy and receiving a diagnosis of cancer cause me to panic, then, and now as I wait.


•I panicked waiting for the biopsy.

•I panicked about the painful procedure to get the biopsy-multiple pokes with long needles through the rectum into the prostate. 

•I panicked waiting for the biopsy results 

•I panicked receiving the biopsy results 

Then came the mother of all my panics:

 •I panicked when myUrologist asked me:

How would you like to treat your prostate cancer?”


I thought he was joking! 

How would I know how to treat prostate cancer?

I went to the library and checked out about a dozen books from the library, and purchased a few on Amazon.


With the treatment of prostate cancer, each treatment choice has different quality of life issues to face. After hours upon hours of research, I could not make up my mind. 


So I made an appointment with my Urologist and asked him the following question;

If the situation was reversed and you received the biopsy results I have in front of me, what would you do?

He said:

“I’d have surgery.” 

So I said:

“Refer me for surgery.”

He said:

“Before I do, given your urological history, you may be loose control of your urinary functioning permanently.”


At the time I couldn’t imagine what spending the rest of my life in diapers would mean, so I said:

“Refer me for surgery” 


He sent me to San Francisco (UCSF) which is how I came to lose my prostate in San Francisco.


Fast forward to today. So I’m not in the least bit worried about the biopsy procedure. They will scrape some of the skin off my arm for the biopsy. 

(A tad easier than multiple needles to the rectum)


Prostate cancer is #2 as the leading cancer death in men. (Lung cancer is #1)


Should my biopsy determine this is cancer, there’s a 99.99% rate of cure.


If I do have skin cancer I won’t need to spend hours researching treatment modalities. I will happily agree to the treatment recommendation of my Dermatologist. 


As for quality of life issues the loss of urinary control, living in diapers, or facing a lifetime of erectile dysfunction aren’t quality of life issues I’ll face.


 I suspect the only quality of life issue I’ll face will be the number days or weeks I won’t be able to use my hot tub and swimming pool. 


I can only muster microscopic levels of sympathy for myself facing the TEMPORARY loss of those two activities.


The fact that these two experiences are vastly different, coping is much easier.


If/when I’d face another life threatening, or quality of life debilitating cancer, I don’t know whether my past experiences will help or make it more difficult to handle.


For now, this seems to be a cake walk in comparison to prostate cancer.


The initial panic I felt when my Primary referred me to a Dermatologist to rule out or treat basal carcinoma has passed.


How am I certain of this?

I’m not losing any sleep!




Rick Redner and his wife Brenda Redner wrote an award winning comprehensive guide to the physical, personal, spiritual, and relational issues, every man, and couple, will face before and after prostate surgery. The title of their book is:

I Left My Prostate in San Francisco-Where's Yours? 


https://amzn.to/2TLTiRQ


After four years of coping with erectile dysfunction after double nerve sparing surgery,  Rick & Brenda decided to share their experiences with devastating effects of erectile dysfunction; which led to a loss of self-esteem, and marital conflict.


They shared why they chose to seek professional help to save their marriage. They also provided a detailed account of how and why Rick went the penile implant route, and how that changed everything. This is a life changing book. Don’t take their word for it, read the Amazon reviews.


The title of their second book is:

Everything You Never Wanted to Know About Erectile Dysfunction 

http://bit.ly/34DL14W