Wednesday, March 7, 2018

How Often Do Cancer Survivors Think About Death and Dying?

Think back to the day you received your diagnosis of cancer. How soon did thoughts about death or dying come to your mind? For me, thoughts about death occurred within seconds after I received the news I had prostate cancer.

What's surprising to me is how often I think about death seven years later, even though my last PSA test came back undetectable.

I decided to ask the community of men on my Prostate Cancer Pre & Post Surgery Facebook page how often they thought about death and dying.
Here's a sample of answers I received:
  • Just passing thoughts.
  • I'm five years out and I think about it almost daily.
  • I don't think about it any more often than before I was diagnosed with prostate cancer.
  • Most days.
  • Every day.
  • I think of death too often.
The first thing I noticed was the variety of answers I received. I expected everyone to say they thought about it multiple times every day.
The answers I received suggest there's a wide variation in how often cancer survivors think about death and dying.

The frequency of thoughts about death and dying is less important than the conversation we engage in with ourselves each time we think about dying.
My initial thoughts about death were terrifying. I imagined spending months in agonizing pain that no amount of medication would successfully manage.

I imagined my life savings would be wiped out by high deductibles and out-of-pocket expenses. I was convinced I wouldn't live long enough to walk my daughter down the aisle, become a grandparent, retire in good health or travel with my wife.

I have a long list of friends, family and acquaintances who died within the year of receiving their diagnosis. Therefore, the possibility of surviving cancer never entered my mind.

I expected to go down hill rapidly and die within the first year after I received my diagnosis.
Every time I engaged in self-talk about dying, it ended the same way. I'd feel distressed, fearful, pessimistic about the future and overwhelmed with grief and sadness.

I wanted to protect my wife, so I kept these conversations to myself. I believe she wanted to protect me from her fears, so we coped with our individual fears together, but alone. In doing so, we deprived ourselves of the comfort and support we had to offer each other.

There are healthy, life-affirming ways to think about your own death, but where can you find them?

The Bible helped me overcome my fear and pessimism. These three verses were life changing:
  • Teach us to number our days, that we may gain a heart of wisdom. (Psalm 90:12).
A diagnosis of prostate cancer taught me to number my days. Since then, every part of my life changed.

Before my cancer diagnosis, if you said to me, "You're going to write two award-winning books, write articles and cut your work schedule down to three days a week." I wouldn't have believed you. Yet, that's exactly what happened.

  • O death, where is thy sting? O grave, where is thy victory? (1 Corinthians 15:55)
This verse is a powerful reminder to me that death isn't the last chapter of my life.
  • We are confident, I say, and willing rather to be absent from the body, and to be present with the Lord (2 Corinthians 5:8)
This verse reminds me of where and with whom I'm going to spend eternity.
I'm no longer distressed when I think about death and dying. I'm reminded to use my remaining time wisely. My relationships, my priorities, my values and how I use my time, skills and talents were all transformed.

Your thoughts, feelings, past experiences, attitudes, religious beliefs and your personal history coping with loss will all impact the way you speak, comfort or cause distress as you think about your mortality.

Note: This article appeared in Prostate Cancer News Today 

Rick Redner and his wife Brenda Redner wrote two award-winning books. The first:
provides men and couples with information and support before, during and after prostate surgery.

Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
The title of their book is:


Eleven Struggles After Prostate Cancer Treatment


Coping with prostate cancer is an ongoing challenge that rarely ends when you complete your treatment.


I was reading a thread in a prostate cancer support forum that asked the following question:

Was your greatest battle with prostate cancer:

A. Before treatment. 

B. During treatment. 

C. After treatment.


Most of the men chose "C," After treatment because they were living with a host of quality-of-life issues following their prostate cancer treatment.


When I applied the question to my personal experiences as a prostate cancer survivor, there was no doubt that "C" was my answer.


I'm going to supply some abbreviations to make it easier to think about and share some of the quality-of-life issues men and couples face before, during, and after prostate cancer treatment.

  • ED: Erectile dysfunction.

  • UL: Urinary leakage.

  • SE: Side effects of treatment.

  • DT: Distressing thoughts or fears.

  • MT: Marital tension or increased fighting.

  • LM: Lost Manhood.

  • D or B: Divorce or breakup.

  • BP: Bowel problems.

  • LL: Lower libido; a drop or total loss of sexual desire.

  • TS: Trouble sleeping.

  • BS: Bladder Spasms 

  • FP: Financial problems because of missed work or the cost of treatment.

I'm asking everyone who reads this to share when their biggest struggles occurred and to share a few of those struggles.


I'll start. It was difficult and extremely stressful to receive the news that I had prostate cancer, but my biggest battles occurred after my treatment.


I suffered from all of these listed below:

  • ED: Erectile dysfunction. Neither ED medication or penile injections worked effectively 

  • UL: Urinary leakage.

  • SE: Side effects of treatment.

  • DT: Distressing thoughts or fears.

  • MT: Serious Marital Tension 

  • LM: Depression over Lost Manhood 

  • BS Bladder Spasms requiring prescription medication 

  • LL: Lower libido: I was totally disinterested in sex or offering my wife every form of physical affection.

  • TS:I had trouble sleeping. There were times I needed prescription medications 

  • FP: Financial problems. I faced a $6,000 deductible, times two. The first $6,000 went toward surgery. The second $6,000 went for penile implant surgery. Twelve-thousand dollars put a huge hole in my savings account and delayed my retirement plans. 

Due to serious marital problems that arose with the life changes of living without a prostate, we needed to get professional counseling to save our three decade old marriage.


There’s little doubt in my mind that are marriage would NOT have survived if we avoided professional counseling.


When did your biggest challenges and struggles coping with cancer occur?

A.  Before

 B. During

 C. After treatment

What if any steps have you taken to cope with/solve the challenges you face?


Note: This article appeared in Prostate Cancer News Today 

Rick Redner and his wife Brenda Redner wrote two award-winning books. The first:
provides men and couples with information and support before, during and after prostate surgery.

Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.


The title of their book is:
Everything You Never Wanted to Know About Erectile Dysfunction and Penile Implants
 




Do You Know the Members of the Cancer Committee Inside Your Head?

As kids, we were taught to say: "Sticks and stones may break my bones but words will never harm me." When tears are in your eyes and you're feeling crushed by a cruel remark, you discover the truth. Words have the power to cause long-lasting harm.
That's the reason it's important to familiarize yourself with the committee inside your head that speaks to you about your life as a cancer survivor. I've heard a lot of unhealthy and relationship-damaging advice from some of my committee members.
Despite my warnings, they continued to share their thoughts and opinions until I gave them their pink slip and fired them.

These are persistent folks who travel far and wide seeking to join the committee of every cancer survivor.

I'll introduce a few of my committee members so that you can accept or reject them if they come to you asking to join your committee.

Wendy Worrier: Her favorite time to visit is at nighttime. She enjoys keeping you awake when you'd prefer to sleep. She carefully evaluates the challenges you face and presents you with the worst possible outcomes. Her specialty is fomenting recurrence anxiety. If she can take away the peaceful and calm moments of your journey by focusing your attention on the possibility of your cancer returning, she's got you exactly where she wants you.

Debbie Downer: If you were dying of thirst in a desert and you stumbled upon a life-saving oasis, Debbie Downer would appear and say that your experience in the oasis was miserable because of a lack of ice. No matter how successful your treatment is, if you have any unpleasant side effects, Debbie Downer will focus all of your attention on the negative aspects of coping with cancer. There is nothing positive that can or will happen to you that she can't ruin with her negative outlook.

Withdrawn Wilson: He has one motto, it goes like this: "People are not your friends, avoid them at all costs." He will work hard to convince you that no one can understand what you're going through. He'll lead you to feel offended and disappointed. He will nourish and feed your disappointment and hurt by replaying them in your mind over and over. Soon the feelings are mutual. You don't want to see anyone, and no one will have a desire to see you. When you've been turned away from people, you often turn to mood-changing behaviors to dull the ache of isolation and loneliness. Drugs, alcohol, pornography, affairs and compulsive spending are a few of the side effects of spending too much time with Withdrawn Wilson.

Angry Alex: His specialty involves breaking up relationships. You know he's active when there is fighting, arguments, harsh words, sarcasm, hostile humor, bitterness and angry silence. If you become negative about the future of your relationship or consider breaking up, Angry Alex couldn't be happier. He's a powerful foe. Sometimes it takes support or professional counseling to defeat him.

Amazing Grace is guided by a biblical principle from 1 Corinthians 13:4-8:
"Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres. Love never fails. ..." 

Amazing Grace lives to surprise you, either directly or indirectly. When you receive a gift, an act of kindness, a prayer, a word of encouragement, the gift of laughter, or compassion, Amazing Grace is working in your life. She's the most valuable member of the committee in my head. It's her voice and the gifts she brings into my life that have made the difference in how I cope with cancer.

I've given Wendy Worrier, Debbie Downer, Withdrawn Wilson and Angry Alex their pink slips. I've discovered they're persistent.

They repeatedly reapply for their positions. They send me texts, emails and FaceTime phone calls reminding me of their contributions to my life and my journey with cancer.
Sometimes I've believed them, until I check the accuracy of their messages with Amazing Grace.

Can you identify any of your committee members? Are there pink slips you can hand out?

If Amazing Grace isn't on your committee, speak with folks who are familiar with her voice and her works. Ask them to help you craft an invitation. Faith in God often beckons her to your committee.

It's important to keep tabs on all members of your cancer survivor committee that have access to your thoughts, attitudes and behaviors.

Note: This article appeared in Prostate Cancer News Today 

Rick Redner and his wife Brenda Redner wrote two award winning books. The first:
provides men and couples with information and support before, during and after prostate surgery.
Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
The title of their book is:







Tuesday, March 6, 2018

Cancer Gives Grandparenting New Meaning

When I was diagnosed with prostate cancer seven years ago, there were two life events I was certain I wouldn't live long enough to see. The first was walking my daughter down the aisle.

The second was living long enough to see one of my children become a parent. In the past seven years, I've been blessed to meet three granddaughters.
Perhaps I should feel embarrassed or ashamed to admit that I don't find newborns interesting. They eat, cry, pee, poop, and sleep. As one of my sons observed, "babies don't do anything."

I just spent a week in Illinois visiting my newborn granddaughter. As I held her, I was overwhelmed by a rush of thoughts and emotions.

It's vastly different holding your child versus holding your grandchild. Time is precious. Grandparents know how quickly each phase ends.
It won't be long before they're talking and walking around the house. This means it's important to enjoy each phase, because they end so quickly.

I'm more focused as a grandparent. The pressures and cares of the world and career are easily put aside. The outside world ceases to exist in the precious moments of holding your grandchild.

As a parent, inconsolable crying was stressful to me in a matter of minutes. As a grandparent, I'm not a fan, but I don't get desperate so quickly. I'm more baby-focused. The panic or need to escape that I felt as a new father isn't there to bother me.

I'm not in the least bit worried about spoiling my granddaughter. Rather than use quiet time to get away, quiet time is the best time to hold her and behold the wonder of a newborn child.As I stare into my granddaughter's eyes, I'm painfully aware of how few memories both she and I will share together.

We're separated by time and distance. It takes 12 hours of travel time, with a combination of flying and driving to reach their home.

Then there are the expenses of traveling. Between airfare, airport parking, a car rental, and kennel fees for our dogs, a one-week visit costs north of $2,000 for my wife and me. For us, that limits our visits to once a year at best.

Our limited time together means I won't play an important part of her day-to-day growing up or creating memories of shared experiences together.

In addition, we are separated by a vast age difference. I'll be 66 this year. I doubt I'll live long enough to see her drive a car, graduate high-school, or fall in love. It's possible she'll grow up without many memories of the time we spent together. These thoughts bring tears to my eyes.

Cancer is a thief. It has robbed me of many friends and family. Saying a tearful goodbye as we headed back to California touched that nerve.
Like cancer, distance is a thief. It will rob me of the opportunity to leave a legacy in the life of my newborn granddaughter.

As we said our goodbyes, we shed many tears. All of us knew we would not see each other again for a long time.

The weekend we arrived back in California, my wife and I received an invitation to share a meal with our son, daughter-in-law, and two granddaughters. We are grateful three of our four children live in California. We see two of our granddaughters on a regular basis. We are part of their lives.

Prior to my cancer diagnosis, comfort by comparison occasionally worked. So, saying to myself, "I'm fortunate that two of three grandchildren live a few miles away," might successfully distract me from my painful loss.

As a cancer survivor, I've come to despise comfort by comparison.
These include remarks like:
At least you have the good cancer.    
Living in diapers isn't so bad when you consider the alternative.  
You should feel grateful you're doing so well (when compared with whomever they know who died from cancer).   
What are you complaining about when some men are dying from prostate cancer. (I've said this to myself.)

I'm blessed to see three of my children and two of my three granddaughters on a regular basis. That reality doesn't take away the pain and sorrow I feel about missing out on being a part of the lives of my family living in Illinois.

I consider it a valuable lesson I've learned from cancer survivorship that I can acknowledge painful and unpleasant feelings in my life and in the lives of the people I know without feeling compelled to make them or myself feel better with a comfort by comparison remark.

Has comfort by comparison helped you cope with unwanted change or loss.
Note: This article appeared in Prostate Cancer News Today 

Rick Redner and his wife Brenda Redner wrote two award winning books. The first:
provides men and couples with information and support before, during and after prostate surgery.

Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
The title of their book is:


Find Meaning in Your Cancer-related Suffering

My six-year presence on social media provides me with the opportunity to hear from thousands of men and couples coping with prostate cancer.

Some of them are doing great, while others had their lives and relationships fall apart.
There's not a relationship between prognosis and adjustment outcomes. In other words, some men who are terminal are coping well. They're living their remaining time with meaning and purpose. They're growing closer to their partner.

An example is Mark Bradford, who's coping with end-stage prostate cancer. He recently wrote a blog titled, "Last Times." I encourage you to read it.

How you cope with the time you have left as a cancer survivor is greatly influenced by your attitude, thoughts, and feelings toward loss and suffering, rather than your prognosis.
I believe it's useful for cancer survivors to become familiar with the work of Vicktor Frankl.

During World War II, he spent three years in a number of Nazi concentration camps. He faced starvation, unimaginable cruelty, torture, horrendous living conditions, mass executions, and the daily stench of burning flesh.

Based on his observations and experiences living in concentration camps, he wrote a book about suffering. The title is "Man's Search For Meaning."
I'm going to discuss a few of his quotes related to how to respond to suffering and cancer-related loss.

Those who manage to cope well with unwanted change and loss understand this reality:
"Everything can be taken from a man but one thing: the last of the human freedoms — to choose one’s attitude in any given set of circumstances, to choose one’s own way."
A large number of men get stuck in the belief that erectile dysfunction has taken away their manhood. If that's the meaning attached to losing their erectile abilities, men usually give up on the notion of finding new and creative ways to satisfy their partner. They typically withdraw from all forms of affection, such as kissing and holding hands.

Frankl wisely observed:
"When we are no longer able to change a situation, we are challenged to change ourselves."
When we face unwanted cancer-related loss that we cannot change, it is time to change ourselves.

If we get stuck in a victim mentality where we feel hopeless, helpless, and powerless, we won't believe there are new, different, and creative ways to live with what we've lost.

I said goodbye to my victimhood when my wife presented me with a word picture that fit my current circumstances.

She said I should consider thinking of myself as a soldier in the war against prostate cancer. Everything I lost as a result of surgery are my war injuries. I'm not the same person I was when the war began, but I've made it home.
Frankl says:

"Life is never made unbearable by circumstances, but only by lack of meaning and purpose."
It wasn't in my life's plan to write books and articles about prostate cancer. I never imagined I'd be hosting prostate cancererectile dysfunction, and penile implant pages on Facebook.

Those are the fruits of the meaning and purpose I found as a prostate cancer survivor. Each of us needs to discover our own meaning and purpose as cancer survivors.
When I was first diagnosed, I was fearful I'd die before meeting a single grandchild. I'm writing this paragraph at the Oakland airport. I'm waiting for a flight to Illinois to meet my third granddaughter. My wife and daughter are with me.

My priorities changed after my diagnosis. My career moved down the ladder of my priorities. Spending time with family moved up the priority ladder.

There's one more place I find meaning and purpose in suffering, loss, and unwanted change. That source is the Bible. This Bible verse from Romans 5:3 is important to me:
"Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope."   

This verse convinces me there's not the tiniest or greatest amount of suffering, loss, and unwanted change that goes to waste. God can use it all to build up character traits that I find highly useful as I live my life as a cancer survivor.

Finding a new meaning and purpose wasn't easy. I needed professional help before I was willing to leave my position as the guest of honor at my "by invitation only" pity party.
Frankl is correct. We can choose our attitudes when we can't change our situation. We can find new meaning and purpose. We can live above our current circumstances.
Frankl reminds us:

"In some ways suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of a sacrifice."

We can choose to discover new meaning and purpose in our lives as cancer survivors.
Note: This article appeared in Prostate Cancer News Today 

Rick Redner and his wife Brenda Redner wrote two award winning books. The first:
provides men and couples with information and support before, during and after prostate surgery.

Their second book was written for couples living with!erectile dysfunction. After living with erectile dysfunction for four years, Rick chose penile implant surgery. The couple share how implant surgery changed their lives and relationship.
The title of their book is: